Searchable Databases and Information
Researching information about your child’s cancer helps you better understand their condition and find ways to support them best. Here are some trustworthy resources to help you get started.
The ALSF provides a variety of multimedia resources on childhood cancer information. Multimedia resources cover topics from types of childhood cancers to how to talk to children about cancer.
The ASK Childhood Cancer Foundation created five video series from experts at the Children’s Hospital of Richmond at VCU that explain topics of interest. These series include Ask a Nurse, Educational Support, Family Support, Emotional Support, and Survivorship Support.
APHON’s disease-specific Handbooks for Patients and Families provide a comprehensive overview of hematologic and oncologic diseases. This organization also provides a list of other available resources.
The ACCO yields information on childhood cancer statistics, diagnosis, clinical trials, and more. In addition, the ACCO provides a virtual library resource and free books for families dealing with childhood cancer.
The CCA Kids’ Cancer Pages are a national resource directory that provides information and support resources for families of children with cancer.
Alex’s Lemonade Stand provides comprehensive pediatric Cancer Guides that include explanations of childhood cancer, descriptions of treatments, access to resources, and a wide variety of shared experiences.
The Children’s Oncology Group is the world’s largest pediatric cancer research organization. The COG is a collaborative body of more than 200 national and international children’s oncology centers, which work together to conduct clinical trials. The COG is dedicated to providing reliable information on medical knowledge, coping with cancer, and research.
The Children's Ontology Group also partnered with St. Baldricks Foundation to share the Children’s Oncology Group Family Handbook for information on treatment, support, and follow-up care.
The Coalition Against Childhood Cancer is an international, collaborative childhood cancer network seeking to advance childhood cancer causes in advocacy, family support, survivorship, research, and treatment. In addition, CAC2 hosts the Hope Portal resource database and the thoroughly vetted Childhood Cancer Fact Library.
The Courageous Parents Network strives to empower parents and caregivers with multimedia resources that reflect the shared experiences of other families through videos, podcasts, blogs, and more.
The mission of CureSearch is to end childhood cancer by driving targeted and innovative research with measurable results in an accelerated time frame. The website offers informative online guides and resources addressing the specifics of different types of childhood cancer, what cancer is, and an extensive video library of childhood cancer-related information.
The Hope Portal is a searchable database that provides access to over 400 organizations assisting childhood cancer patients and their families. Updated frequently, this database is a valuable resource for locating informational resources, support, summer camps, travel options, and wishes for children with cancer and their siblings.
Lachlan’s Hope is dedicated to supporting families throughout their journey with stem cell and bone marrow transplants. They provide information on the life-saving organization, Be the Match, and highlight resources for transplant and blood cancer patients.
The National Cancer Institute shares information on types of cancer, treatments, coping skills, survivorship, and more. Additionally, the NCI directs families to related resources in other areas covered by the National Cancer Institute.
The NCCS provides a series of publications tailored by age. From kindergarteners to college students to parents, the NCCS publications are perfect cancer resources for all ages.
